Brave Love

I knew when I decided to love you

fully, with all of my cells

that I was risking everything.

I knew you were human

and that you might die

younger than either of us wanted.

Despite this,

I still chose to love all of you

with all of me.

Because you deserved that

and because I did too.

And though you did die -

younger than either of us wanted -

to stand in the pain of your death

and continue to love you fully,

fiercely,

with unwavering dedication,

has transformed me.

For I know now,

that to have given every breath of myself

to love the all of you

is the most beautifully brave thing

I have ever done in my lifetime.

It is the single greatest achievement

of my life.

I have learned

that this is what true love is -

to choose the possibility of pain

for the privilege to be love.

It is to risk everything

- everything -

inside ourselves.

It is to meet our greatest fears

and decide that it's still worth it,

so that we may come to realize

that we are capable of giving

the kind of love

that changes lives

and moves mountains.

In this way,

true, deep, complete love is not easy.

It is simple, but not an easy choice.

Which is why

whenever I see such love in the world

It leaves me in awe.

Never a more beautiful thing

have I seen

than the immense bravery

of any single human being

that chooses to LOVE.

Image Source

How I got ... here

My crazy, active son

(link is to the pro photographer who took it - this was an 'outtake' shot)

To catch up, it's about four weeks after Ian's had heart surgery, and I've rushed him to hospital where he collapsed on arrival.

Once Ian was settled and awake again, we opted for me to head home and be with our son.  We were used to Ian being in hospital, so it was no biggie to either of us at the time for me to head off.  I had been advised he’d probably be moved to a high care ward as they weren’t sure what was going on.

At 3am I got a phone call to say that he was in ICU.  So I drop our son off at my parents (who were very conveniently located between our home and the hospital), and head into the hospital.  I was there for a couple of hours and he was scared, but still quite chatty. 

I went home for breakfast, then headed back to the hospital.  While Ian was relaying John’s antics to the nurse, he crashed.  At this point I thought I’d be a widow by the end of the day.   His cardiologist was interstate for the weekend, but flew home to manage his case.

Later that day, I wound up in a meeting with 5 heads of department from the hospital.  The first thing I was told is Ian had suffered a massive stroke, but they didn’t know the impact.  Then I got told, as they had suspected, Ian had the rarest of complications from his ablation – an atrial-oesophageal fistula.  A hole had formed between his heart and oesophagus.  This would kill him unless it was repaired, but the scar tissue from his past surgeries made everyone really nervous to try the usual repair options available.

Except the one specialisation that apparently gets everything that everyone else doesn’t want to touch – the radiographic surgeon.  They planned to insert a stent to block the hole under x-ray, and without inflating the area with gas to reduce the risk of a further stroke – a strategy they couldn’t find other records of.  And there was no guarantee he’d survive the surgery.

Our Minister and my step-mother kept me company while Ian was in surgery.  I was really relieved when I got the message he was back in ICU. 

Then started a three week battle to beat the various infections he had developed. 

Once he woke, we learned the extent of his stroke – language was gone, as was his left side mobility.  And he’d developed an interest in Australian Rules Football, which he’d detested prior (he was a soccer man and a Birmingham fan). Thanks to the efforts of staff, a stubborn personality and I’m sure his son, we managed to get to a good point medically, and he was released to the stroke ward.  

He did pretty well for the next 4 weeks or so, and then we found his oesophagus was growing through the stent and bleeding.  Back into ICU and yet more procedures.  The upshot- the stent could not be removed, and he’d likely die on the table during any attempt to do so.  So it had to stay put.

A few days later, Ian had his first seizure. 

Then we celebrated our first wedding anniversary. 

A few days later I was finally told there was no hope and given two options – either let his oesophagus rupture, which would be a traumatic end, or let infection win and give him a peaceful end. 

I chose the latter.

Ian passed away about a week later, on 14 June 2012. Ten days after our first wedding anniversary. 

We’d crammed more in 3 years and 3 days of knowing each other than many do in a lifetime.

Now 18 months later, I’m raising our crazy, active son the best I can, and facing my 40^th in 2014 with a life experience I never thought I’d have at this early in my life.

The Choice

source

I was telling my therapist all about the process I went through to decide to sell our house, quit my job and move to Portland after Dave died.

I told her about the epic snowstorm that buried me in 2 feet of snow on Dave's birthday and left me without power for two days and without contact with another human for four days.

I told her about putting the house on the market and getting an offer and selling it in less than a month. I told her about the day I woke up and had the thought "I'm going to move to Portland!"

Then I told her about finding my current home. I told her that the realtor didn't have my condo on her radar at all. We happened to drive by and I saw a for sale sign. I bought it days later.

I am in unit 1. My next door neighbor in unit 2 was widowed in her 50s. The professor who lives in unit 3 was widowed in September after his wife's battle with cancer. Three widowed people in a row.

When I told her this part, her eyes filled with tears. She said she was suddenly struck by what I'd been through and overcome. She said it gave her hope for herself and all her patients. I've never thought of it that way. That makes it sound heroic. It hasn't felt heroic. It's felt desperate.

All this time, I've felt desperate. I've made decisions I had to make to do the best I could for myself even though my compass was gone. I've leaped into the unknown with what I can see now was nothing but hope.

It was hard to see it as hope then because I was terrorized by fear and doubt. Other than having one clear moment when I formulated my plan to move to Portland, I didn't once feel absolutely certain or at peace about any of these decisions. They were all terrifying for me. I had doubts that kept me up at night, and turned my stomach. I deliberated and tortured myself over ever single decision I've had to make since my partner in life died.

I had to finally get a little more comfortable with the idea that the world wouldn't end if I screwed up. The worst had already happened so from that point on, I could get through selling our house, moving and starting a new life. Even if it all turned out to be a mistake, it wouldn't have been as bad as hearing the doctors tell me that they'd done all they could but hadn't been able to save my soul mate.

And yet...It's probably a product of my combined losses, not just Dave's, but I still expect more to go wrong, even as I grow more comfortable with change and making decisions on my own. I still expect what I have left (my cats, my home, my friends) to be simply gone if I don't keep my eye on them. I halfway expect a fire to take it all away from me if I'm not looking, or tragedy of another sort I haven't even thought of yet to come my way.

Logically I understand that nothing could be as bad as Dave's death, but my heart feels precariously patched together right now. I could survive more loss, yes, but would I want to? Would all hope be lost at that point? Would I have anything left in me with which to soldier on?

I have had hope all along. It's what drove me to jump into a new life when I was terrified to leave the old one behind. It's what keeps me going now. My wish is that hope is strong enough to withstand anything that comes its way.

Life isn't extra gentle with me now just because my husband died. The universe doesn't give a shit. It just keeps churning away, with its joy and sorrow, good and evil. I hope (ha!) like hell I have enough in me to sustain whatever else comes my way.

I'm not naive enough to say things (even to myself) like "everything will be okay," anymore. I have to learn to live with the light of hope and the darkness of potential tragedy. Holding them both together takes work. It's like trying to process things like school shootings. How does life go on after something that horrific? I don't know, but it does.

I suppose it's what we do in the face of all the horror. We reach out because we don't give up hope DESPITE the sorrow. It's all we can do. We make things better when we can. We hold onto each other when we can't. We breathe. We take leaps of faith. We don't give up.

I can't close up shop yet and hide away from everything because it might hurt more. That would be the real tragedy. Tragedy on top of tragedy. Dave couldn't help leaving. He would have stayed if he could have. I have a choice though. I can give up or I can keep hoping and fully living with all the risks it entails.

I'd better not squander that choice.